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Tag: lynch syndrome

Day 642/14

Laura Gilkey on October 4, 2016October 4, 2016

Benjamin’s reinduction phase is halfway complete. He took his last dose of Dexamethasone tonight. His allopurinol has been discontinued because his uric acid has stabilized, as has his phosphorous, sodium… Continue Reading Day 642/14

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, colonoscopy, family, lynch syndrome, platelets, polyps, relapse, school, transfusion, virus4 Comments

Day 621

Laura Gilkey on September 13, 2016September 13, 2016

Last night it was Benji’s turn to have a nightmare. He woke up so scared, but wouldn’t tell me what he was dreaming about. He didn’t want to go back… Continue Reading Day 621

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, genetics, grandparents, lynch syndrome, marriage, PMS2, siblings1 Comment

Day 616

Laura Gilkey on September 8, 2016September 8, 2016

Sometimes people just wake up on the wrong side of the bed. Today, it was Benjamin. As with everything “off,” I wondered if it was cancer-related–or if it just was.… Continue Reading Day 616

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bMMRD, chemo delay, CMMRD, lynch syndrome, school, siblings2 Comments

Day 596

Laura Gilkey on August 19, 2016August 19, 2016

Today was a day of processing. I felt tired when I woke up this morning. Exhausted, actually. I was planning to drive to my mom’s house in Winter Park tonight… Continue Reading Day 596

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, constitutional mismatch repair deficiency, lynch syndromeLeave a comment

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