It has been a long day, but here, at its end, gratitude is finding me easily. Benjamin went to sleep last night complaining of throat pain. At 3am, he woke… Continue Reading Day 383
Day 383
on Tag: lumbar puncture
on Day 382
on The boys enjoyed a Monday off from school today in honor of Dr. King. They played outside in the cool sunshiny morning, then spent the afternoon with friends at a local indoor… Continue Reading Day 382
Day 330
on After yesterday’s feast, at about 1:30pm, I gave Benji his first rescue dose of Leucovorin that followed Tuesday’s lumbar puncture. His second was at 1:30am. I set my alarm to… Continue Reading Day 330
Day 327
on Our bags are packed and waiting by the door. The four wheelers and dirt bikes are strapped onto the trailer hitched to Michael’s truck. All of the medicines, supplements, oils… Continue Reading Day 327
Day 326
on Benji woke up thinking it was Tuesday. He didn’t complain, he just padded into our room with a big sigh, and asked what time we had to leave for the… Continue Reading Day 326
Day 299
on Benjamin began long term maintenance today. (I notice I have a tendency to isolate this fact, like it needs verification. It is still sinking in.) It was a super early… Continue Reading Day 299