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Tag: inotuzumab

Day 716/88

Laura Gilkey on December 17, 2016

I didn’t want to look at this morning’s numbers. I tried so hard last night to focus on Benji’s slow and steadily declining leukemia blasts, but this morning I was… Continue Reading Day 716/88

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, CAR-T, family, inotuzumab, platelets, relapse, siblings12 Comments

Day 715/87

Laura Gilkey on December 16, 2016December 17, 2016

It’s 3:45am. Benjamin just vomited every bit of last night’s nourishment from his body. He has abdominal pain he can’t describe. I don’t know anymore if it’s a result of… Continue Reading Day 715/87

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, blood transfusion, inotuzumab, nausea, platelets, relapse, sleep, ultrasound13 Comments

Day 714/86

Laura Gilkey on December 15, 2016

Benjamin’s fever took a while to come down last night. He was burning up. When it finally came down we were able to catch a few hours of sleep. His… Continue Reading Day 714/86

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, bone marrow aspirate, fever, inotuzumab, marinol, nausea, platelets, relapse, transfusion12 Comments

Day 713/85

Laura Gilkey on December 14, 2016December 15, 2016

Benjamin has received his second dose of Inotuzumab, and everything went smoothly. The morning report revealed more of the same: a slow and steady decline of leukemia cells. Benji’s total… Continue Reading Day 713/85

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fever, inotuzumab, platelets, relapse8 Comments

Day 712/84

Laura Gilkey on December 14, 2016December 14, 2016

Benji woke up before the sun in horrible pain. I wondered what was happening; he felt so much better yesterday! He begged for a bath, but declined pain medicine. The… Continue Reading Day 712/84

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, kytril, marriage, nausea, platelets, relapse, spleen11 Comments

Day 711/83

Laura Gilkey on December 12, 2016December 13, 2016

Hope is such a strange and morphing creature. This morning, the fog was so thick outside our window that it masked the world below. Nothing else was visible. With the… Continue Reading Day 711/83

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, CAR-T, inotuzumab, nurses, platelets, port, spleen10 Comments

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