Day 725/97

We’re settled back in here on 7 South. I was up early, packing bags and enjoying the quiet morning light through the windows of our beautiful house. When Benji woke up a little while later he felt awful. His stomach hurt terribly, and I’m sure his imminent return to the hospital wasn’t helping. Michael and… Continue Reading Day 725/97

Day 720/92

Benji has received his last dose of Inotuzumab, at least for this cycle. The next step is a huge step, and I’m trying to stay present as it approaches. For now, we just need to get him feeling more comfortable, whether home is on the horizon or not. We were up before the sun again.… Continue Reading Day 720/92

Day 719/91

Benji and I were up before shift change again. He was in great discomfort. He begged our night nurse not to draw morning labs–a daily procedure that has never bothered him–because he couldn’t stand the idea of saline flushes. He was so nauseous and in so much pain he couldn’t tolerate anything, no mention of… Continue Reading Day 719/91

Day 718/90

Benjamin and I slept well last night and were both awake at shift change. His numbers are holding steady. Saturday’s increase may have been sample bias, I don’t know; but since then we’ve seen the slow decline we’re used to from Inotuzumab. Each time I walk to the computer and look at the blasts category,… Continue Reading Day 718/90

Day 717/89

Today was a very good day. It didn’t start that way. We were up before 5am with Benjamin in great abdominal pain. He asked for heat packs and cold packs and tried to get comfortable, but couldn’t. The episode resulted in vomiting before sunrise. We finally got back to sleep, and I slept right through… Continue Reading Day 717/89