We are in the waiting space. We have been here five times before. I wish I weren’t used to this but I am, and the blessing therein is perspective. The… Continue Reading Day 726/98
Tag: inotuzumab
Day 725/97
We’re settled back in here on 7 South. I was up early, packing bags and enjoying the quiet morning light through the windows of our beautiful house. When Benji woke… Continue Reading Day 725/97
Day 720/92
Benji has received his last dose of Inotuzumab, at least for this cycle. The next step is a huge step, and I’m trying to stay present as it approaches. For… Continue Reading Day 720/92
Day 719/91
Benji and I were up before shift change again. He was in great discomfort. He begged our night nurse not to draw morning labs–a daily procedure that has never bothered… Continue Reading Day 719/91
Day 718/90
Benjamin and I slept well last night and were both awake at shift change. His numbers are holding steady. Saturday’s increase may have been sample bias, I don’t know; but… Continue Reading Day 718/90
Day 717/89
Today was a very good day. It didn’t start that way. We were up before 5am with Benjamin in great abdominal pain. He asked for heat packs and cold packs… Continue Reading Day 717/89