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Day 769/141

Laura Gilkey on February 8, 2017May 10, 2017

Since Benjamin’s diagnosis, we have asked for guidance to make decisions for his highest good. Today we were guided in a direction we did not expect, but one that could… Continue Reading Day 769/141

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baths, fever, home, hospice, hospital, nurses, pain, palliative care, relapse, transfusions82 Comments

Day 768/140

Laura Gilkey on February 7, 2017May 10, 2017

“Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.” ~Thich Nhat… Continue Reading Day 768/140

Categories: Uncategorized Tags: acute lymphoblastic leukemia, clinical trial, fear, fever, home, platelets, port, relapse, steroids64 Comments

Day 767/139

Laura Gilkey on February 6, 2017May 10, 2017

Benjamin continues to do his brave work, and we continue to make the best decisions we can for him. This has always been true, of course, but we are accustomed… Continue Reading Day 767/139

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusions, death, hemoglobin, home, hospice, palliative care, platelets, relapse, steroids67 Comments

Day 766/138

Laura Gilkey on February 5, 2017May 10, 2017

The sky at shift change was a thick, foggy red. This is is a strange and confusing time. I am trying to accept all phases of this slow and peaceful… Continue Reading Day 766/138

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death, home, hospice, pain, palliative care, platelets, relapse, research60 Comments

Day 740/112

Laura Gilkey on January 10, 2017May 13, 2017

High highs and low lows today. Sunrises and sunsets. The comforts of home and the realities of leukemia. For the first time in far too long, my day began on… Continue Reading Day 740/112

Categories: Uncategorized Tags: acute lymphoblastic leukemia, home, inotuzumab, morphine, pain, platelets, relapse, spleen9 Comments

Day 739/111

Laura Gilkey on January 9, 2017May 13, 2017

Benji is sleeping next to me. He is pleasantly exhausted from a long, busy day that went very well. Benji was a little nervous this morning and his tummy hurt.… Continue Reading Day 739/111

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, clinic, clinical trial, home, inotuzumab, nutrition, relapse, stomach pain11 Comments

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