Day 737/109

It sure was nice to make breakfast in my own kitchen this morning. Benjamin woke up feeling strong. He was hungry and ready for action. He was excited to eat, but midway through his meal, his stomach pain brought him to tears. Michael and I thought we had noticed a pattern forming; the same thing happened… Continue Reading Day 737/109

Day 735/107

We are home. Everything feels pretty overwhelming right now. So many emotions today and so much uncertainty ahead. Home is the word and the feeling and the place I am grateful to return to. When I saw Benjamin’s lab numbers this morning I wasn’t sure we’d be discharged. His white cell count and number of… Continue Reading Day 735/107

Day 723/95

We. Are. Home. Until Monday morning, I will relish every sound and every smell and every breath in this house. The decision to come home was very much a last-minute one. I was up before the sun, unable to sleep, wrapping gifts and nervous about the day. Benjamin was still sleeping at shift change when I… Continue Reading Day 723/95

Day 717/89

Today was a very good day. It didn’t start that way. We were up before 5am with Benjamin in great abdominal pain. He asked for heat packs and cold packs and tried to get comfortable, but couldn’t. The episode resulted in vomiting before sunrise. We finally got back to sleep, and I slept right through… Continue Reading Day 717/89