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Tag: fever

Day 691/63

Laura Gilkey on November 22, 2016November 23, 2016

Benjamin’s fever rose and fell throughout the night, and into the day. At morning lab draw, our nurse took a blood culture. Nothing has come back positive for bacterial growth.… Continue Reading Day 691/63

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cyclophosphamide, etoposide, family, fever, platelets, relapse, siblings10 Comments

Day 672/44

Laura Gilkey on November 3, 2016November 4, 2016

Benji and I woke up at shift change, but he went back to sleep almost immediately. I stayed up for the gorgeous sunrise. When he woke for the day a… Continue Reading Day 672/44

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, fever, immunotherapy, relapse3 Comments

Day 671/43

Laura Gilkey on November 2, 2016November 3, 2016

Benji’s Blinatumomab began its slow drip at 5:12 this morning. Twenty hours in, and so far, so good. It seems like such a mundane phrase for such a big day.… Continue Reading Day 671/43

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow transplant, Cytokines, dexamethasone, fever, immunotherapy, radiation, relapse, steroids4 Comments

Day 605

Laura Gilkey on August 28, 2016

Benjamin woke up several times throughout the night. At 5am he took a hot bath and asked for Kytril. At 7am, he did the same thing. I couldn’t give him… Continue Reading Day 605

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fever, virusLeave a comment

Day 542

Laura Gilkey on June 26, 2016June 27, 2016

Benjamin was so tired from his day on the water last night that he fell asleep in our bed, watching TV with Banyan, before it was time to take his… Continue Reading Day 542

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, fever, kytril, methotrexate, nausea, septra, siblings, travel1 Comment

Day 518

Laura Gilkey on June 2, 2016June 2, 2016

I couldn’t sleep last night. My eyes were wide open until at least 2am. My mind was racing. Still, I’m thankful I woke up before the sun for our last… Continue Reading Day 518

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fever, schoolLeave a comment

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