Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: fever

Day 769/141

Laura Gilkey on February 8, 2017May 10, 2017

Since Benjamin’s diagnosis, we have asked for guidance to make decisions for his highest good. Today we were guided in a direction we did not expect, but one that could… Continue Reading Day 769/141

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baths, fever, home, hospice, hospital, nurses, pain, palliative care, relapse, transfusions82 Comments

Day 768/140

Laura Gilkey on February 7, 2017May 10, 2017

“Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.” ~Thich Nhat… Continue Reading Day 768/140

Categories: Uncategorized Tags: acute lymphoblastic leukemia, clinical trial, fear, fever, home, platelets, port, relapse, steroids64 Comments

Day 761/133

Laura Gilkey on January 31, 2017May 10, 2017

We are settled into our new room on the fifth floor, the Pediatric Intensive Care Unit. It was scary to come here. But this is where we needed to be… Continue Reading Day 761/133

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, fever, nurses, pain, PICU, platelets, siblings, steroids, x-ray61 Comments

Day 760/132

Laura Gilkey on January 30, 2017May 10, 2017

“Stand up straight and realize who you are, that you tower over your circumstances. You are a child of God. Stand up straight.” ~Maya Angelou These words saved me today.… Continue Reading Day 760/132

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, chemotherapy, clinical trial, fear, feeding tube, fever, hope, liver, lungs, pain, relapse, siblings, spleen, total parenteral nutrition90 Comments

Day 714/86

Laura Gilkey on December 15, 2016

Benjamin’s fever took a while to come down last night. He was burning up. When it finally came down we were able to catch a few hours of sleep. His… Continue Reading Day 714/86

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, bone marrow aspirate, fever, inotuzumab, marinol, nausea, platelets, relapse, transfusion12 Comments

Day 713/85

Laura Gilkey on December 14, 2016December 15, 2016

Benjamin has received his second dose of Inotuzumab, and everything went smoothly. The morning report revealed more of the same: a slow and steady decline of leukemia cells. Benji’s total… Continue Reading Day 713/85

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fever, inotuzumab, platelets, relapse8 Comments

Posts navigation

Older posts

Sidebar

Footer Content