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Tag: family

Day 696/68

Laura Gilkey on November 27, 2016November 27, 2016

Benji slept a lot better last night. We both did. He woke up for the day and coughed for quite some time, but cleared his lungs and moved on. He… Continue Reading Day 696/68

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, clinical trials, CMMRD, family, immunotherapy, platelets, relapse, research, spleen, x-ray11 Comments

Day 693/65

Laura Gilkey on November 24, 2016November 25, 2016

Today was a very good day. I admit the holiday-ness of it all threatened my emotional stability more than once. But Benji felt better today than he has in many… Continue Reading Day 693/65

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusions, family, gratitude, marriage, platelets, relapse, research, siblings5 Comments

Day 691/63

Laura Gilkey on November 22, 2016November 23, 2016

Benjamin’s fever rose and fell throughout the night, and into the day. At morning lab draw, our nurse took a blood culture. Nothing has come back positive for bacterial growth.… Continue Reading Day 691/63

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cyclophosphamide, etoposide, family, fever, platelets, relapse, siblings10 Comments

Day 689/61

Laura Gilkey on November 20, 2016

The sunrise was spectacular. Benji and I were awake, calmly lying in bed as our night nurse prepared to draw labs at 6am. I sleepily asked if she was going… Continue Reading Day 689/61

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, Neupogen, platelets, relapse, spleen, transfusion9 Comments

Day 682/54

Laura Gilkey on November 13, 2016November 14, 2016

Benji and I didn’t get much sleep last night. He had a platelet transfusion after midnight. Toward the end of it, he said he was feeling like he was getting… Continue Reading Day 682/54

Categories: Uncategorized Tags: acute lymphoblastic leukemia, community, family, pain, platelets, relapse, spleen, transfusion4 Comments

Day 681/53

Laura Gilkey on November 12, 2016November 13, 2016

Benjamin had a great day today. So did Banyan. I’m grateful for two happy children, and for the first step on a new path. I woke up to the sounds… Continue Reading Day 681/53

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, cyclophosphamide, etoposide, family, relapse4 Comments

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