Day 212

This weekend is a nice little sweet spot for Benjamin. He’s still quite hungry, but his mood swings have stabilized considerably. His cold is behind him. And although he has tired moments throughout the day, he feels like moving his body again. My mother arrived this morning for a visit. It’s so nice to have… Continue Reading Day 212

Day 200

Benjamin slept extremely well in his new bed. He was the last to rise in the house. We made breakfast, packed lunch, and headed to All Children’s. His attitude was terrific. We finished the Charlotte’s Web audiobook last week, so he chose a new one today: The Lion, The Witch and The Wardrobe. An excellent… Continue Reading Day 200

Day 199

From the time we woke up until _____ (we’re still going), we worked on Project Kids’ Room Renovation 2015. It has been such a productive day, and for the first time in weeks months, Benjamin is sound asleep in his own bed. He knows there will always be space for him in our room, when… Continue Reading Day 199

Day 194

Benjamin felt much better as the day went on today. He woke up feeling sore and his tummy was tender, so I fed him breakfast and Kytril and we promptly returned to bed. We watched the newer version of Charlie and the Chocolate Factory. It was unanimous: the original wins. We progressed through our to-do… Continue Reading Day 194

Day 193

Today was a challenging day. I am grateful once again for this space to sort it out. I had to work harder than usual to stay positive today, and I know that mostly it’s because I’m feeling completely exhausted. Benjamin was my path to holding it together. There is no other option. “One day closer” is becoming my… Continue Reading Day 193