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Tag: blood transfusion

Day 711/83

Laura Gilkey on December 12, 2016December 13, 2016

Hope is such a strange and morphing creature. This morning, the fog was so thick outside our window that it masked the world below. Nothing else was visible. With the… Continue Reading Day 711/83

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, CAR-T, inotuzumab, nurses, platelets, port, spleen10 Comments

Day 704/76

Laura Gilkey on December 5, 2016

All of today’s procedures went very smoothly. Benjamin is safe and sound, resting comfortably in his bed on the seventh floor. Benjamin’s scheduled 4am transfusion bumped his platelets from 3,000… Continue Reading Day 704/76

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, beads of courage, blood transfusion, immunotherapy, inotuzumab, nausea, platelets, relapse16 Comments

Day 703/75

Laura Gilkey on December 4, 2016December 5, 2016

“The waiting is the hardest part” is a phrase I’ve used in this space before, a phrase parents on the 7th floor utter frequently. It’s true, there is fear in… Continue Reading Day 703/75

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, blood transfusion, inotuzumab, platelets, relapse, siblings17 Comments

Day 699/71

Laura Gilkey on November 30, 2016December 1, 2016

Benji and I slept soundly in our new bed, in our new room on the seventh floor. His labs were stable again this morning. His neutrophil and white blood cell… Continue Reading Day 699/71

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, apheresis, blood transfusion, family, platelets, relapse8 Comments

Day 696/68

Laura Gilkey on November 27, 2016November 27, 2016

Benji slept a lot better last night. We both did. He woke up for the day and coughed for quite some time, but cleared his lungs and moved on. He… Continue Reading Day 696/68

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, clinical trials, CMMRD, family, immunotherapy, platelets, relapse, research, spleen, x-ray11 Comments

Day 694/66

Laura Gilkey on November 25, 2016November 25, 2016

We had a rough night up here on 7 South. Benjamin woke up many times coughing, and with each episode he cried in pain. He couldn’t pinpoint where the pain… Continue Reading Day 694/66

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, hair loss, neutropenia, platelets, relapse10 Comments

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