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Tag: acute lymphoblastic leukemia

Day 427

Laura Gilkey on March 3, 2016

It was a gorgeous, cool purple morning as my friend and I watched the sun riseĀ over the Ringling Bridge. Always such a beautiful way to start the day. I told… Continue Reading Day 427

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation, mercaptopurine, MRD, rainbow stars, school, siblingsLeave a comment

Day 426

Laura Gilkey on March 2, 2016

I’ve just returned from the third monthly tea with other mothers of children with cancer in Sarasota. I find myself already looking forward to the next time I am in… Continue Reading Day 426

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear1 Comment

Day 425

Laura Gilkey on March 1, 2016

I am grateful to have seen the sunrise this morning, walking with my friend. It sets the whole day up properly. I was able to come home and make pancakes… Continue Reading Day 425

Categories: Uncategorized Tags: acute lymphoblastic leukemia, schoolLeave a comment

Day 424

Laura Gilkey on February 29, 2016

Benjamin had a follow-up visit with cardiology today. It was an appointment I scheduled months ago, as part of our arrangement to check his suspected patent ductus arteriosus (PDA) annually,… Continue Reading Day 424

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cardiology, doxorubicin, heart, methotrexate toxicity, PDALeave a comment

Day 423

Laura Gilkey on February 28, 2016February 28, 2016

My heart is so full sometimes I think it might just burst wide open. Benjamin couldn’t even climb into bed last night, his body was so tired. It was a… Continue Reading Day 423

Categories: Uncategorized Tags: acute lymphoblastic leukemia, faith, rainbow stars, spiritualityLeave a comment

Day 422

Laura Gilkey on February 27, 2016

2/27/15 5:00am Morning blood draw 7:30am ANC 94, PLT 79, HGB 8.5 9:00am Bleeding lips, dry throat 10:15amĀ Histamine sneezing fit 11:30am Decorate IV pole with top hat and mustache 12:15pm… Continue Reading Day 422

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia1 Comment

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