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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 257

Laura Gilkey on September 15, 2015

Benji decided not to go to school this morning. His tummy hurt, and I didn’t want to push it. We fed Banyan and wished him well, then sent him off… Continue Reading Day 257

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, maintenanceLeave a comment

Day 256

Laura Gilkey on September 14, 2015September 15, 2015

I was filled with a sense of optimism today. We have overcome last week’s obstacle, and maybe it will be the final one during this phase. Maybe we are really… Continue Reading Day 256

Categories: Uncategorized Tags: acute lymphoblastic leukemia, interim maintenance 2, kytril, marinol, methotrexate, scopolamine, vincristine2 Comments

Day 255

Laura Gilkey on September 13, 2015September 13, 2015

What an amazing day. I am just filled with gratitude for the people who made it happen. There is something about walking onto a baseball field that makes me feel… Continue Reading Day 255

Categories: Uncategorized Tags: acute lymphoblastic leukemia, kytril, marinol, methotrexate, nausea, scopolamine, vincristine1 Comment

Day 254

Laura Gilkey on September 12, 2015

It was a happy Saturday. I caught up on much needed sleep this morning, and the boys were excited to wake up early and play video games with Daddy. Benji… Continue Reading Day 254

Categories: Uncategorized Tags: acute lymphoblastic leukemia, siblingsLeave a comment

Day 253

Laura Gilkey on September 11, 2015

What a difference a day makes. Benji is feeling so much better. So many friends and family have sent us their prayers and well wishes and we are very grateful.… Continue Reading Day 253

Categories: Uncategorized Tags: acute lymphoblastic leukemia, diarrhea, Erwinia, nausea, siblings1 Comment

Day 252

Laura Gilkey on September 10, 2015September 10, 2015

Benji’s mysterious tummy trouble culminated today. At 4:30am he woke up with pain and nausea that persisted until we arrived at the clinic. With careful timing I was able to… Continue Reading Day 252

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, infection, kytril, marinol, nausea, scopolamine4 Comments

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