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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 383

Laura Gilkey on January 19, 2016January 19, 2016

It has been a long day, but here, at its end, gratitude is finding me easily. Benjamin went to sleep last night complaining of throat pain. At 3am, he woke… Continue Reading Day 383

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, family, intrathecal methotrexate, lumbar puncture, prednisone, siblings, steroids, supportLeave a comment

Day 382

Laura Gilkey on January 18, 2016January 19, 2016

The boys enjoyed a Monday off from school today in honor of Dr. King. They played outside in the cool sunshiny morning, then spent the afternoon with friends at a local indoor… Continue Reading Day 382

Categories: Uncategorized Tags: acute lymphoblastic leukemia, intrathecal methotrexate, lumbar puncture, vincristine1 Comment

Day 381

Laura Gilkey on January 17, 2016

Sundays are becoming my favorite days. My dutch oven is pulling double duty, producing a round, crisp, golden sourdough in the morning, and simmering rich chicken bone broth at night.… Continue Reading Day 381

Categories: UncategorizedLeave a comment

Day 380

Laura Gilkey on January 17, 2016

It was a gorgeous, sunny morning in Sarasota. Benjamin made his famous cheddar scrambled eggs for us for breakfast, then we met Kathy and Gana at a new sports field… Continue Reading Day 380

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, immune system, immunity, oral chemotherapy, prevention, siblings1 Comment

Day 379

Laura Gilkey on January 15, 2016January 15, 2016

I looked in my rearview mirror this morning as I was driving the boys to school, and saw an expression on Benjamin’s face that made me uncomfortable. He looked absent,… Continue Reading Day 379

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hospital, methotrexate toxicity2 Comments

Day 378

Laura Gilkey on January 14, 2016January 16, 2016

“If you want to lift yourself up, lift up someone else.” These were the words on the marquee as I drove into Southside this morning to drop Benjamin off and… Continue Reading Day 378

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hospital homebound, school, siblings1 Comment

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