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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 605

Laura Gilkey on August 28, 2016

Benjamin woke up several times throughout the night. At 5am he took a hot bath and asked for Kytril. At 7am, he did the same thing. I couldn’t give him… Continue Reading Day 605

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fever, virusLeave a comment

Day 604

Laura Gilkey on August 27, 2016August 27, 2016

It was a good feeling to wake up and know that we had a Saturday in Sarasota together. No one had to work today. No one had school projects today.… Continue Reading Day 604

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, essential oils, nutrition, virus1 Comment

Day 603

Laura Gilkey on August 26, 2016August 27, 2016

I didn’t tell Benji’s teacher about his bruises. He knows to be especially careful right now, and he certainly knows when to call me. Fortunately his bruising seems to be… Continue Reading Day 603

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bruising, school, sports, therapyLeave a comment

Day 602

Laura Gilkey on August 25, 2016August 25, 2016

These are interesting days. After Benjamin woke up he clutched his tummy and asked for Kytril. By the time we got to school, he was totally fine and eager to play with… Continue Reading Day 602

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bruising, kytril, petichiae, platelets, school1 Comment

Day 601

Laura Gilkey on August 24, 2016August 24, 2016

Today was easier than yesterday. The fears ebbed and flowed, but I was able to dismiss them almost as quickly as they came. You have no place here. You are not serving… Continue Reading Day 601

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseball, bruises, bruising, genetics, marriage, platelets1 Comment

Day 600

Laura Gilkey on August 23, 2016August 23, 2016

I am hoping, after last night, that I’m on the other side of the worst of the fear. I expect it will come back frequently, and I will learn to… Continue Reading Day 600

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, research, school2 Comments

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