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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 725/97

Laura Gilkey on December 26, 2016December 27, 2016

We’re settled back in here on 7 South. I was up early, packing bags and enjoying the quiet morning light through the windows of our beautiful house. When Benji woke… Continue Reading Day 725/97

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow aspirate, inotuzumab, nausea, relapse, siblings15 Comments

Day 724/96

Laura Gilkey on December 25, 2016December 26, 2016

All things considered, we had a very merry Christmas on Clematis Street. It was really hard in many ways, some expected and some not so much. But there is no… Continue Reading Day 724/96

Categories: Uncategorized Tags: acute lymphoblastic leukemia, christmas, nausea, relapse16 Comments

Day 723/95

Laura Gilkey on December 24, 2016

We. Are. Home. Until Monday morning, I will relish every sound and every smell and every breath in this house. The decision to come home was very much a last-minute one.… Continue Reading Day 723/95

Categories: Uncategorized Tags: acute lymphoblastic leukemia, christmas, family, home, nausea, relapse, siblings18 Comments

Day 722/94

Laura Gilkey on December 23, 2016December 24, 2016

Tomorrow is Christmas Eve, and where we spend the holiday night is still very much up in the air. Benjamin and I both slept long and well last night. When… Continue Reading Day 722/94

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear, gratitude, marinol, nausea, relapse11 Comments

Day 721/93

Laura Gilkey on December 22, 2016December 23, 2016

Today was Benjamin Wilson Gilkey’s 9th birthday. There have been so many emotions flowing through this room today. I’m exhausted and I’m grateful. Next to me is a boy who… Continue Reading Day 721/93

Categories: Uncategorized Tags: acute lymphoblastic leukemia, birthdays, family, marinol, nausea, platelets, relapse, siblings, transfusion11 Comments

Day 720/92

Laura Gilkey on December 21, 2016December 21, 2016

Benji has received his last dose of Inotuzumab, at least for this cycle. The next step is a huge step, and I’m trying to stay present as it approaches. For… Continue Reading Day 720/92

Categories: Uncategorized Tags: acute lymphoblastic leukemia, birthday, c. diff, food, inotuzumab, nausea, relapse9 Comments

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