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Tag: stomach pain

Day 756/128

Laura Gilkey on January 26, 2017May 10, 2017

The construction crew of the new hospital research building worked all night long last night, pouring the concrete slab on the top floor. Every time Benjamin woke up to urinate,… Continue Reading Day 756/128

Categories: Uncategorized Tags: acute lymphoblastic leukemia, clinical trial, CT scan, diarrhea, kidneys, liver, nausea, oxygen, relapse, spleen, stomach pain25 Comments

Day 753/125

Laura Gilkey on January 23, 2017May 10, 2017

It was still dark this morning when Benjamin woke up wincing. He said he’d had a bad dream. I asked him to tell me about it, he said he forgot, and went… Continue Reading Day 753/125

Categories: Uncategorized Tags: acute lymphoblastic leukemia, colonoscopy, diarrhea, lumbar puncture, nausea, pain, polyps, port, relapse, spleen, stomach pain16 Comments

Day 752/124

Laura Gilkey on January 22, 2017May 10, 2017

and everything seems to have gone terribly wrong that can but one breath at a time is an acceptable plan she tells herself and the air is still there  ~ani… Continue Reading Day 752/124

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear, marinol, morphine, nausea, pain, relapse, spleen, stomach pain, x-ray9 Comments

Day 743/115

Laura Gilkey on January 13, 2017May 17, 2017

Our path looks much more clear today. The National Institutes of Health considers Benjamin a viable candidate for their CAR-T clinical trial targeting the CD22 protein. It’s such a relief to… Continue Reading Day 743/115

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, inotuzumab, intrathecal chemotherapy, lumbar puncture, nausea, relapse, stomach pain10 Comments

Day 739/111

Laura Gilkey on January 9, 2017May 13, 2017

Benji is sleeping next to me. He is pleasantly exhausted from a long, busy day that went very well. Benji was a little nervous this morning and his tummy hurt.… Continue Reading Day 739/111

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, clinic, clinical trial, home, inotuzumab, nutrition, relapse, stomach pain11 Comments

Day 737/109

Laura Gilkey on January 7, 2017May 13, 2017

It sure was nice to make breakfast in my own kitchen this morning. Benjamin woke up feeling strong. He was hungry and ready for action. He was excited to eat, but… Continue Reading Day 737/109

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, CMMRD, home, PD-1, relapse, stomach pain10 Comments

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