We are settled into our new room on the fifth floor, the Pediatric Intensive Care Unit. It was scary to come here. But this is where we needed to be… Continue Reading Day 761/133
Day 761/133
on Tag: platelets
on Day 759/131
on Rhythm. A word and an idea I’ve always loved. Tonight, our rhythms feel very off. I’m listening to Benjamin breathe through an oxygen mask while he sleeps. His breaths are… Continue Reading Day 759/131
Day 747/119
on We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting,… Continue Reading Day 747/119
Day 744/116
on Benji continued his pattern of ebbs and flows today. He took many baths, used his hot water bottle, napped and rested. He had one dose of morphine for pain and one… Continue Reading Day 744/116
Day 742/114
on Our intention was unmistakable. A clear path toward Benjamin’s perfect healing. Today we heard the words “no clear path,” and “imperfect options.” I realized today that we aren’t waiting for a path to appear… Continue Reading Day 742/114
Day 741/113
on Today was a really hard day. Benjamin woke up in pain, with his spleen hurting as badly as it did last night. I gave him a dose of morphine and… Continue Reading Day 741/113