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Tag: nutrition

Day 739/111

Laura Gilkey on January 9, 2017May 13, 2017

Benji is sleeping next to me. He is pleasantly exhausted from a long, busy day that went very well. Benji was a little nervous this morning and his tummy hurt.… Continue Reading Day 739/111

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, clinic, clinical trial, home, inotuzumab, nutrition, relapse, stomach pain11 Comments

Day 604

Laura Gilkey on August 27, 2016August 27, 2016

It was a good feeling to wake up and know that we had a Saturday in Sarasota together. No one had to work today. No one had school projects today.… Continue Reading Day 604

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, essential oils, nutrition, virus1 Comment

Day 431

Laura Gilkey on March 7, 2016

Benjamin stayed home from school today. He woke up super congested and coughing up a storm. He has been stuffy the last couple of mornings, but his congestion usually dissipates once he’s… Continue Reading Day 431

Categories: Uncategorized Tags: acute lymphoblastic leukemia, homeschool, hunger, nutrition, school, steroids1 Comment

Day 416

Laura Gilkey on February 21, 2016

Benjamin’s February steroid pulse has come to an end. Hallelujah. Every night this week, the medicine has reared its ugly head during the interminable, tear-filled wait between “please be seated” and… Continue Reading Day 416

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, mania, nutrition, siblings, steroidsLeave a comment

Day 172

Laura Gilkey on June 22, 2015June 23, 2015

Just as he has every day since being discharged Friday, Benjamin woke up feeling nauseous. But for the second day in a row, he has told me that he “smells the hospital”… Continue Reading Day 172

Categories: Uncategorized Tags: acute lympho, kytril, nausea, nutrition1 Comment

Day 38

Laura Gilkey on February 8, 2015February 8, 2015

Another gorgeous day to end this almost perfect weekend. I woke up this morning and made a nice big Sunday breakfast, then sat down to two hours of research while Michael kept… Continue Reading Day 38

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation, nutrition8 Comments

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