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Tag: nausea

Day 712/84

Laura Gilkey on December 14, 2016December 14, 2016

Benji woke up before the sun in horrible pain. I wondered what was happening; he felt so much better yesterday! He begged for a bath, but declined pain medicine. The… Continue Reading Day 712/84

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, kytril, marriage, nausea, platelets, relapse, spleen11 Comments

Day 710/82

Laura Gilkey on December 11, 2016December 12, 2016

It appears as though yesterday’s platelet count was a fluke. Today, the number was back down to 2,000. All day yesterday I tried to shush the voice in my head… Continue Reading Day 710/82

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, marinol, morphine, nausea, spleen11 Comments

Day 709/81

Laura Gilkey on December 10, 2016December 11, 2016

Benji needed more morphine and heat packs throughout the night to stay comfortable, but these tools worked, and he slept well. He woke up in pain and wanted a hot… Continue Reading Day 709/81

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, morphine, nausea, platelets, relapse, spleen15 Comments

Day 707/79

Laura Gilkey on December 8, 2016December 9, 2016

Last night was a rough one. Benjamin woke up several times during our short sleep, unable to find comfort. His spleen hurt worse than it has in weeks. At first… Continue Reading Day 707/79

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, kytril, marinol, morphine, nausea, relapse, stomach pain9 Comments

Day 704/76

Laura Gilkey on December 5, 2016

All of today’s procedures went very smoothly. Benjamin is safe and sound, resting comfortably in his bed on the seventh floor. Benjamin’s scheduled 4am transfusion bumped his platelets from 3,000… Continue Reading Day 704/76

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, beads of courage, blood transfusion, immunotherapy, inotuzumab, nausea, platelets, relapse16 Comments

Day 692/64

Laura Gilkey on November 23, 2016

Benjamin woke up early this morning with a high fever and tummy pain. He vomited during shift change a few minutes later. It was a strange, dark, pungent liquid. There… Continue Reading Day 692/64

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Blinatumomab, CAR-T, clinical trial, nausea, platelets, relapse, spleen8 Comments

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