Benji woke up again in the middle of the night. He was in and out of the bathtub, his tummy hurting badly, with desperation and exhaustion in his eyes. Finally… Continue Reading Day 267
Day 267
on Tag: marinol
on Day 256
on I was filled with a sense of optimism today. We have overcome last week’s obstacle, and maybe it will be the final one during this phase. Maybe we are really… Continue Reading Day 256
Day 255
on What an amazing day. I am just filled with gratitude for the people who made it happen. There is something about walking onto a baseball field that makes me feel… Continue Reading Day 255
Day 252
on Benji’s mysterious tummy trouble culminated today. At 4:30am he woke up with pain and nausea that persisted until we arrived at the clinic. With careful timing I was able to… Continue Reading Day 252
Day 248
on Banyan joined Benji and me this morning as we traveled to All Children’s Hospital. The parking garage was much roomier, and there was no hustle and bustle as we headed… Continue Reading Day 248
Day 215
on I couldn’t sleep again last night. One of the conversations I had with Dr. Grana yesterday was about a study linking a specific gene mutation to a higher incidence of… Continue Reading Day 215