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Tag: marinol

Day 717/89

Laura Gilkey on December 18, 2016December 19, 2016

Today was a very good day. It didn’t start that way. We were up before 5am with Benjamin in great abdominal pain. He asked for heat packs and cold packs… Continue Reading Day 717/89

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, home, inotuzumab, marinol, nausea, relapse11 Comments

Day 714/86

Laura Gilkey on December 15, 2016

Benjamin’s fever took a while to come down last night. He was burning up. When it finally came down we were able to catch a few hours of sleep. His… Continue Reading Day 714/86

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, bone marrow aspirate, fever, inotuzumab, marinol, nausea, platelets, relapse, transfusion12 Comments

Day 710/82

Laura Gilkey on December 11, 2016December 12, 2016

It appears as though yesterday’s platelet count was a fluke. Today, the number was back down to 2,000. All day yesterday I tried to shush the voice in my head… Continue Reading Day 710/82

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, marinol, morphine, nausea, spleen11 Comments

Day 708/80

Laura Gilkey on December 9, 2016

There were a lot of positive things about today that I’d like to focus on. Right now I’m finding it difficult. I’m grateful for this space in which to sort… Continue Reading Day 708/80

Categories: Uncategorized Tags: acute lymphoblastic leukemia, christmas, inotuzumab, marinol, morphine, platelets, spleen8 Comments

Day 707/79

Laura Gilkey on December 8, 2016December 9, 2016

Last night was a rough one. Benjamin woke up several times during our short sleep, unable to find comfort. His spleen hurt worse than it has in weeks. At first… Continue Reading Day 707/79

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, kytril, marinol, morphine, nausea, relapse, stomach pain9 Comments

Day 273

Laura Gilkey on October 2, 2015October 2, 2015

It was another rough night and another trying day. I am trying to be grateful for the steps Benji has made toward healing, and appreciate the slow wisdom with which… Continue Reading Day 273

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, fever, immunoglobulin, IVIG, marinol, total parenteral nutrition10 Comments

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