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Tag: immunotherapy

Day 666/38

Laura Gilkey on October 28, 2016October 29, 2016

Huge ups and huge downs today. I’m choosing to focus on the ups as much as I can. The downs are starting to make me feel numb. I don’t want… Continue Reading Day 666/38

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, Cytokines, immunotherapy, make-a-wish, relapse, steroids6 Comments

Day 664/36

Laura Gilkey on October 26, 2016

Today was the day Michael and I set aside to take care of business. We divided and conquered. He worked from homeĀ and only went to one meeting, helping me take… Continue Reading Day 664/36

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, broviac, immunotherapy, relapse2 Comments

Day 661/33

Laura Gilkey on October 23, 2016October 23, 2016

We didn’t get to go home today. We were richly blessed right here instead. Benji’s absolute neutrophil count (ANC) dipped down to 140. His blast number went up a little,… Continue Reading Day 661/33

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, family, gratitude, immunotherapy, kindness, port, relapse3 Comments

Day 659/31

Laura Gilkey on October 21, 2016October 22, 2016

Benjamin didn’t get up at all last night to use the bathroom, but when he woke up this morning, he corrected his problem with a record-breaking liter of urine. I’ve… Continue Reading Day 659/31

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bladder, Blinatumomab, bone marrow transplant, CMMRD, immunotherapy, relapse, siblings6 Comments

Day 655/27

Laura Gilkey on October 17, 2016October 18, 2016

30 was the number of the day today. Benjamin’s absolute neutrophil count (ANC) dipped back down to 30. Not the direction we wanted it to go. This almost certainly means… Continue Reading Day 655/27

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Blinatumomab, immunotherapy, relapse2 Comments

Day 653/25

Laura Gilkey on October 15, 2016

Benjamin had a great day today, despite plummeting numbers. His neutrophil count is just 40. That’s lower than it’s been in over a year; he has virtually no immune system.… Continue Reading Day 653/25

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, bone marrow transplant, broviac, immunotherapy, platelets, relapse, transfusion2 Comments

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