Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: fever

Day 282

Laura Gilkey on October 10, 2015October 10, 2015

This roller coaster hasn’t come to a halt just yet. My intentions are being refocused tonight. I cannot grow complacent. It isn’t enough to just wait to be discharged. We… Continue Reading Day 282

Categories: Uncategorized Tags: acute lymphoblastic leukemia, creatinine, fever, mucositis, nausea, platelets, Stevens Johnson Syndrome3 Comments

Day 280

Laura Gilkey on October 8, 2015October 8, 2015

Benji and I slept well. He woke up often but went back to sleep easily once I’d refreshed his water and put a new cold compress on his chest. He… Continue Reading Day 280

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, antibiotics, fever, mucositis, Stevens Johnson Syndrome6 Comments

Day 275

Laura Gilkey on October 4, 2015October 4, 2015

I’m not sure how to begin writing this. So many emotions wrapped up into one October Saturday. There have been many hard days, especially the most recent ones, but I… Continue Reading Day 275

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, escalating methotrexate, fever, methotrexate, mucositis, nausea, pain, platelets, rash8 Comments

Day 273

Laura Gilkey on October 2, 2015October 2, 2015

It was another rough night and another trying day. I am trying to be grateful for the steps Benji has made toward healing, and appreciate the slow wisdom with which… Continue Reading Day 273

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, fever, immunoglobulin, IVIG, marinol, total parenteral nutrition10 Comments

Day 271

Laura Gilkey on September 29, 2015

Benji had a high fever all night long, and woke up often with pain and diarrhea. He took fewer baths and we got a bit more sleep than in nights… Continue Reading Day 271

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, acute renal injury, creatinine, fever, mucositis4 Comments

Day 268

Laura Gilkey on September 26, 2015September 26, 2015

It was another sleepless night last night. Benji and I finally settled into sleep after midnight. We were up again for warm baths at 1:30am, 2:00am and 2:30am. I was… Continue Reading Day 268

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, Clindamycin, creatinine, fever, kidneys, methotrexate6 Comments

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content