Day 268

It was another sleepless night last night. Benji and I finally settled into sleep after midnight. We were up again for warm baths at 1:30am, 2:00am and 2:30am. I was growing more and more concerned. His pain was increasing. He was asking for pain relief rather than denying it, and it wasn’t working. I called… Continue Reading Day 268

Day 261

What a roller coaster.¬†We went up to the All Children’s Emergency Care Center tonight, totally unexpectedly. We are very grateful to be home. Benji developed what looked like a heat rash on the upper left side of his back this morning after breakfast. It was warm to the touch, mildly painful, and not itchy. I… Continue Reading Day 261