Day 759/131

Rhythm. A word and an idea I’ve always loved. Tonight, our rhythms feel very off. I’m listening to Benjamin breathe through an oxygen mask while he sleeps. His breaths are short, staccato, labored. He has a fever and his resting heart rate is entirely too high. He got a chest x-ray just before midnight, and… Continue Reading Day 759/131

Day 751/123

Benjamin feels better today than he did yesterday, and his labs continue to trend in the right direction. This is enough for today. Slow, steady healing. We were up several times throughout the night, responding to pain, or the need for the bathroom, or beeps from the IV pole. Benjamin found it easier to rise… Continue Reading Day 751/123

Day 746/118

This has been our longest stretch away from the hospital since October. It’s been sweet, nourishing, comforting, and necessary. And I am so ready for it to end. Benjamin needs treatment. He is in pain more frequently and for longer periods of time now, and it is all stemming from his spleen. Tonight he said… Continue Reading Day 746/118

Day 745/117

The ebbing and flowing continues¬†on this gorgeous Sunday. Benjamin needed no morphine, no Kytril, and no vomit basin today. These are all blessings. It’s also a blessing that I have these things¬†at my disposal, thanks to a nurse practitioner who can call in prescriptions for me with a simple text. Benji also ate today, twice:… Continue Reading Day 745/117

Day 731/103

Benjamin began this New Year with a strong and happy day. He got plenty of sleep last night. He only complained of tummy pain a couple of times, and mildly. His appetite continues to increase and he is slowly gaining weight again. His lab numbers are holding very steady, including his blast percentage (12), and… Continue Reading Day 731/103