Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: family

Day 764/136

Laura Gilkey on February 3, 2017May 10, 2017

Benjamin slept deeply and peacefully last night and I followed, breathing with him. I woke up at shift change, grateful to see one of my favorite nurses coming on board… Continue Reading Day 764/136

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death, family, pain, relapse, support106 Comments

Day 759/131

Laura Gilkey on January 29, 2017May 10, 2017

Rhythm. A word and an idea I’ve always loved. Tonight, our rhythms feel very off. I’m listening to Benjamin breathe through an oxygen mask while he sleeps. His breaths are… Continue Reading Day 759/131

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, cytarabine, family, heart, oxygen, platelets, pulse, relapse, siblings, transfusion16 Comments

Day 751/123

Laura Gilkey on January 21, 2017May 11, 2017

Benjamin feels better today than he did yesterday, and his labs continue to trend in the right direction. This is enough for today. Slow, steady healing. We were up several… Continue Reading Day 751/123

Categories: Uncategorized Tags: acute lymphoblastic leukemia, camp, family, nausea, pain, relapse, siblings, spleen9 Comments

Day 746/118

Laura Gilkey on January 16, 2017May 17, 2017

This has been our longest stretch away from the hospital since October. It’s been sweet, nourishing, comforting, and necessary. And I am so ready for it to end. Benjamin needs… Continue Reading Day 746/118

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, intrathecal methotrexate, kytril, lumbar puncture, morphine, nausea, pain, relapse, siblings13 Comments

Day 745/117

Laura Gilkey on January 15, 2017May 17, 2017

The ebbing and flowing continues on this gorgeous Sunday. Benjamin needed no morphine, no Kytril, and no vomit basin today. These are all blessings. It’s also a blessing that I have… Continue Reading Day 745/117

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, relapse7 Comments

Day 731/103

Laura Gilkey on January 1, 2017May 13, 2017

Benjamin began this New Year with a strong and happy day. He got plenty of sleep last night. He only complained of tummy pain a couple of times, and mildly.… Continue Reading Day 731/103

Categories: Uncategorized Tags: acute lymphoblastic leukemia, appetite, c. diff, family, friends, relapse, transfusion9 Comments

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content