Benji woke up in much better spirits today. He had made his own breakfast by the time I returned from my sunrise bridge walk, and greeted me happily. Banyan got… Continue Reading Day 308
Day 308
on Tag: creatinine
on Day 307
on This was an emotionally intense day from start to finish. Benjamin was out of sorts when he woke up, and he said his tummy hurt. I noticed sweat on his upper lip… Continue Reading Day 307
Day 287
on According to our night nurse, Benji “slept through the night.” That’s not quite accurate, but we definitely got more sleep than we have in many days. It was like a… Continue Reading Day 287
Day 286
on Benji’s lips hurt again last night, and he just couldn’t leave them alone. We didn’t get much sleep up here on the seventh floor. Sarah spent the night with us… Continue Reading Day 286
Day 285
on Benjamin is no longer in isolation. He has been fever free for well over 24 hours, and his latest swab came back negative for rhinovirus–he doesn’t even have a common… Continue Reading Day 285
Day 283
on “Mucosal desquamation.” That’s the name for what is happening inside Benjamin’s body due to Methotrexate-induced Stevens Johnson Syndrome. His lips, mouth, tongue, throat and belly are all sloughing internally and… Continue Reading Day 283