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Tag: acute lymphoblastic leukemia

Day 599

Laura Gilkey on August 22, 2016

The first day of the new schoolyear is in the books. The boys woke up happy, and despite very little sleep, I did too. Benjamin’s tummy hurt again, but I… Continue Reading Day 599

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, constitutional mismatch repair deficiency, kytril, school3 Comments

Day 598

Laura Gilkey on August 21, 2016

Goodbye, summer. The backpacks and lunchboxes are packed and waiting. Third and seventh grade begin tomorrow. We have enjoyed a wonderful adventurous summer with these boys. I wish it didn’t… Continue Reading Day 598

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear, schoolLeave a comment

Day 597

Laura Gilkey on August 21, 2016August 21, 2016

Happy birthday Mimi! Benji woke up with me at 5:30 to head northeast to my mother’s house. He was excited for the adventure and I was grateful for his company.… Continue Reading Day 597

Categories: Uncategorized Tags: acute lymphoblastic leukemia, birthday, grandparents1 Comment

Day 596

Laura Gilkey on August 19, 2016August 19, 2016

Today was a day of processing. I felt tired when I woke up this morning. Exhausted, actually. I was planning to drive to my mom’s house in Winter Park tonight… Continue Reading Day 596

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, constitutional mismatch repair deficiency, lynch syndromeLeave a comment

Day 595

Laura Gilkey on August 18, 2016August 19, 2016

The boys both woke up in good moods. We were all together on a workday morning; a rare treat. We took them out for their favorite bagels before we headed… Continue Reading Day 595

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, constitutional mismatch repair deficiency, DNA, genetics, nausea, siblings5 Comments

Day 594

Laura Gilkey on August 17, 2016August 17, 2016

This morning, I got a phone call from Dr. Oshrine. I’m grateful the kids were still asleep. The genetic testing we’d requested came back earlier than expected, and the results… Continue Reading Day 594

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cafe-au-lait spots, genetics, marraige, siblingsLeave a comment

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