Energy can neither be created nor destroyed. ~First Law of Thermodynamics Benjamin, our brave, sparkly child, is dying. I realized today that I never actually believed this would happen. Not… Continue Reading Day 762/134
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on Tag: acute lymphoblastic leukemia
on Day 761/133
on We are settled into our new room on the fifth floor, the Pediatric Intensive Care Unit. It was scary to come here. But this is where we needed to be… Continue Reading Day 761/133
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on “Stand up straight and realize who you are, that you tower over your circumstances. You are a child of God. Stand up straight.” ~Maya Angelou These words saved me today.… Continue Reading Day 760/132
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on Rhythm. A word and an idea I’ve always loved. Tonight, our rhythms feel very off. I’m listening to Benjamin breathe through an oxygen mask while he sleeps. His breaths are… Continue Reading Day 759/131
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on Everything seemed to take forever today. I don’t know how much of this is based in reality and how much stems from my own anxiety. Benjamin has received his three doses… Continue Reading Day 758/130
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on Benjamin was sitting on the toilet at 3am. He had just vomited and the basin was still full at my feet. His head rested on my belly while I held… Continue Reading Day 757/129