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Tag: acute lymphoblastic leukemia

Day 641/13

Laura Gilkey on October 3, 2016October 3, 2016

Benjamin had another sleepy day. His counts continue to drop, and his ability to fight infection is waning. After he woke up, ate breakfast, and took his morning medicine, we… Continue Reading Day 641/13

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia, platelets, relapse, school2 Comments

Day 640/12

Laura Gilkey on October 2, 2016October 2, 2016

Benjamin has had what his nurses described as an “eventful day.” This morning seems like ages ago. Once again I let Benjamin sleep as late as possible. When he woke… Continue Reading Day 640/12

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dasatanib, dexamethasone, Erwinia, family, platelets, polyps, relapse, transfusion1 Comment

Day 639/11

Laura Gilkey on October 1, 2016

Benjamin slept quite late this morning. I was relieved when he woke up, went to the bathroom, and balanced his input and output. He won’t need lasix tonight. He is… Continue Reading Day 639/11

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow transplant, family, neutropenia, relapse1 Comment

Day 638/10

Laura Gilkey on September 30, 2016October 1, 2016

Benjamin’s tiredness continued today. He slept until 10am. Our nurse was wonderful and flexible and let him sleep, holding his morning medicine an hour to accommodate. It sounds minor, but… Continue Reading Day 638/10

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow transplant, dasatanib, Erwinia, relapse4 Comments

Day 637/9

Laura Gilkey on September 29, 2016September 30, 2016

Today was much calmer than yesterday. Benjamin needed the slower pace. His spirits were high but his body was tired. We honored that, and had a restful, restorative day. Benjamin’s… Continue Reading Day 637/9

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dasatanib, family, glutamine, mouth sores, polyps, relapse1 Comment

Day 636/8

Laura Gilkey on September 28, 2016September 29, 2016

Today was Day 8 of Benjamin’s reinduction therapy. He has had chemotherapy in nearly every way possible today. Through it all his attitude has been sparkly and sweet. He has… Continue Reading Day 636/8

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow transplant, dasatanib, daunorubicin, dexrazoxane, Erwinia, immunotherapy, intrathecal methotrexate, lumbar puncture, relapse, school, vincristine5 Comments

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