At the end of days like this, when I come to this space, I find an exhaustion that permeates everything. I want to collapse but I need to sort things out.… Continue Reading Day 665/37
Day 665/37
on Tag: acute lymphoblastic leukemia
on Day 664/36
on Today was the day Michael and I set aside to take care of business. We divided and conquered. He worked from home and only went to one meeting, helping me take… Continue Reading Day 664/36
Day 663/35
on Less than 24 hours after being discharged from the hospital, Benjamin and the rest of us were on a boat on Sarasota Bay, catching one fish after another. It was… Continue Reading Day 663/35
Day 662/34
on We. Are. HOME. I hardly slept last night. I’m not sure why. Every creak of the door sounded more amplified, every beep more pronounced. I sat up to watch the… Continue Reading Day 662/34
Day 661/33
on We didn’t get to go home today. We were richly blessed right here instead. Benji’s absolute neutrophil count (ANC) dipped down to 140. His blast number went up a little,… Continue Reading Day 661/33
Day 660/32
on Today was a good day. I don’t have expectations, but I have hope, and that is a much different and more beautiful animal. Benji and I slept in, Saturday style.… Continue Reading Day 660/32