Benjamin woke up in the middle of the night with low belly pain. I asked him to describe it as he was falling back to sleep, and he said, tearfully, “I… Continue Reading Day 656/28
Day 656/28
on Category: Uncategorized
on Day 655/27
on 30 was the number of the day today. Benjamin’s absolute neutrophil count (ANC) dipped back down to 30. Not the direction we wanted it to go. This almost certainly means… Continue Reading Day 655/27
Day 654/26
on This Sunday began quietly. Benji slept in a little, and I enjoyed my morning coffee over some research. My moms’ group came through for me on the platelet desensitization question. It… Continue Reading Day 654/26
Day 653/25
on Benjamin had a great day today, despite plummeting numbers. His neutrophil count is just 40. That’s lower than it’s been in over a year; he has virtually no immune system.… Continue Reading Day 653/25
Day 652/24
on We woke up to good news this morning. Those blasts that went off to pathology were indeed recovery blasts. There are still no leukemia blasts in Benjamin’s peripheral blood. We… Continue Reading Day 652/24
Day 651/23
on Benjamin slept in this morning. When he woke up he seemed a little down. Withdrawn. I sat with him and gave him space at the same time. I think he… Continue Reading Day 651/23