Tomorrow is Christmas Eve, and where we spend the holiday night is still very much up in the air. Benjamin and I both slept long and well last night. When… Continue Reading Day 722/94
Day 722/94
on Category: Uncategorized
on Day 721/93
on Today was Benjamin Wilson Gilkey’s 9th birthday. There have been so many emotions flowing through this room today. I’m exhausted and I’m grateful. Next to me is a boy who… Continue Reading Day 721/93
Day 720/92
on Benji has received his last dose of Inotuzumab, at least for this cycle. The next step is a huge step, and I’m trying to stay present as it approaches. For… Continue Reading Day 720/92
Day 719/91
on Benji and I were up before shift change again. He was in great discomfort. He begged our night nurse not to draw morning labs–a daily procedure that has never bothered… Continue Reading Day 719/91
Day 718/90
on Benjamin and I slept well last night and were both awake at shift change. His numbers are holding steady. Saturday’s increase may have been sample bias, I don’t know; but… Continue Reading Day 718/90
Day 717/89
on Today was a very good day. It didn’t start that way. We were up before 5am with Benjamin in great abdominal pain. He asked for heat packs and cold packs… Continue Reading Day 717/89