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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 329

Laura Gilkey on November 26, 2015

Thanksgiving Day began with a ride in the woods, just Benji and me. I let him lead. He took me to the river field, a place with neat rows of… Continue Reading Day 329

Categories: Uncategorized Tags: acute lymphoblastic leukemia1 Comment

Day 328

Laura Gilkey on November 25, 2015

The moon is so bright and full tonight shining over the Georgia pines. We are here, our fire barrel is full, and we are happy. The trip north was quick… Continue Reading Day 328

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, family, hunger, mood, prednisone, steroidsLeave a comment

Day 327

Laura Gilkey on November 25, 2015November 25, 2015

Our bags are packed and waiting by the door. The four wheelers and dirt bikes are strapped onto the trailer hitched to Michael’s truck. All of the medicines, supplements, oils… Continue Reading Day 327

Categories: Uncategorized Tags: acute lymphoblastic leukemia, detoxification, intrathecal methotrexate, kytril, long term maintenance, lumbar puncture, maintenance, methotrexate, vincristine5 Comments

Day 326

Laura Gilkey on November 23, 2015

Benji woke up thinking it was Tuesday. He didn’t complain, he just padded into our room with a big sigh, and asked what time we had to leave for the… Continue Reading Day 326

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, lumbar puncture, methotrexate, prednisone, school, vincristine1 Comment

Day 325

Laura Gilkey on November 22, 2015

We took the boys out the breakfast this morning at our favorite neighborhood joint to make up for our lack of Cracker Barrel last night. It was a great way… Continue Reading Day 325

Categories: Uncategorized4 Comments

Day 324

Laura Gilkey on November 21, 2015

On Saturdays in the fall, University of Florida football is somewhat sacred in our family. This morning we woke before the sun to hit the road north to Gainesville to catch… Continue Reading Day 324

Categories: Uncategorized Tags: 6MP, acute lymhoblastic leukemia, essential oils, hunger, mercaptopurine, siblingsLeave a comment

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