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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 425

Laura Gilkey on March 1, 2016

I am grateful to have seen the sunrise this morning, walking with my friend. It sets the whole day up properly. I was able to come home and make pancakes… Continue Reading Day 425

Categories: Uncategorized Tags: acute lymphoblastic leukemia, schoolLeave a comment

Day 424

Laura Gilkey on February 29, 2016

Benjamin had a follow-up visit with cardiology today. It was an appointment I scheduled months ago, as part of our arrangement to check his suspected patent ductus arteriosus (PDA) annually,… Continue Reading Day 424

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cardiology, doxorubicin, heart, methotrexate toxicity, PDALeave a comment

Day 423

Laura Gilkey on February 28, 2016February 28, 2016

My heart is so full sometimes I think it might just burst wide open. Benjamin couldn’t even climb into bed last night, his body was so tired. It was a… Continue Reading Day 423

Categories: Uncategorized Tags: acute lymphoblastic leukemia, faith, rainbow stars, spiritualityLeave a comment

Day 422

Laura Gilkey on February 27, 2016

2/27/15 5:00am Morning blood draw 7:30am ANC 94, PLT 79, HGB 8.5 9:00am Bleeding lips, dry throat 10:15am Histamine sneezing fit 11:30am Decorate IV pole with top hat and mustache 12:15pm… Continue Reading Day 422

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia1 Comment

Day 421

Laura Gilkey on February 26, 2016February 26, 2016

I sent the boys out into their academic worlds this morning with high hopes. They both had quizzes today, but more importantly, I wanted them to feel good about themselves.… Continue Reading Day 421

Categories: Uncategorized Tags: acute lymphoblastic leukemia, emotions, school, siblings, sports, steroids1 Comment

Day 420

Laura Gilkey on February 25, 2016

Benjamin’s teacher pulled me into the classroom this morning to show me the watercolor self-portraits the class had done as part of an exercise on similes. When I saw Benjamin’s painting it… Continue Reading Day 420

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone pain, immune system, prednisone, school, siblings, steroids1 Comment

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