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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 443

Laura Gilkey on March 20, 2016

Saturdays in spring are sports days. It feels good to be back in this groove. We were on our way to the ball fields as the sun rose. Just before… Continue Reading Day 443

Categories: Uncategorized Tags: acute lymphoblastic leukemia, prednisone, septra, sports, steroidsLeave a comment

Day 442

Laura Gilkey on March 18, 2016

Today was the last school day off for Spring Break, and we made the most of it. Lots of dips in our neighbors’ pool, a lovely gathering with friends at… Continue Reading Day 442

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, siblings, steroidsLeave a comment

Day 441

Laura Gilkey on March 17, 2016

Benjamin had a sweaty, steroid-y, fitful night’s sleep. His body felt weak and tired after yesterday’s late night, and he wound up in bed with us. I’m thankful for Spring… Continue Reading Day 441

Categories: Uncategorized Tags: acute lymphoblastic leukemia, mania, school, steroidsLeave a comment

Day 440

Laura Gilkey on March 16, 2016March 17, 2016

Today, one of my dearest friends came to town for a visit. We have been connected fiercely, regardless of time or geography, since college. It was so good to see… Continue Reading Day 440

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, prednisone, steroidsLeave a comment

Day 439

Laura Gilkey on March 15, 2016

We did not cross the Skyway this morning. Our beloved bridge was closed due to fog. So after doing our civic duty at the polls and dropping Banyan off at… Continue Reading Day 439

Categories: Uncategorized Tags: 6MP, absolute neutrophil count (ANC), acute lymphoblastic leukemia, methotrexate, pharmacy, prednisone, rainbow stars, supplementLeave a comment

Day 438

Laura Gilkey on March 14, 2016

Our friend Ross–senior camp counselor, and concierge to Banyan’s last three summers of adventure–has passed away. It has been less than three months since his diagnosis with stomach cancer. The… Continue Reading Day 438

Categories: Uncategorized Tags: acute lymphoblastic leukemia, siblings, vincristine1 Comment

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