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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 665/37

Laura Gilkey on October 27, 2016October 28, 2016

At the end of days like this, when I come to this space, I find an exhaustion that permeates everything. I want to collapse but I need to sort things out.… Continue Reading Day 665/37

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, broviac, make-a-wish, platelets, relapse, remission6 Comments

Day 664/36

Laura Gilkey on October 26, 2016

Today was the day Michael and I set aside to take care of business. We divided and conquered. He worked from home and only went to one meeting, helping me take… Continue Reading Day 664/36

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, broviac, immunotherapy, relapse2 Comments

Day 663/35

Laura Gilkey on October 25, 2016October 25, 2016

Less than 24 hours after being discharged from the hospital, Benjamin and the rest of us were on a boat on Sarasota Bay, catching one fish after another. It was… Continue Reading Day 663/35

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dasatanib, family, relapse4 Comments

Day 662/34

Laura Gilkey on October 24, 2016October 24, 2016

We. Are. HOME.  I hardly slept last night. I’m not sure why. Every creak of the door sounded more amplified, every beep more pronounced. I sat up to watch the… Continue Reading Day 662/34

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, bone marrow aspirate, dasatanib, relapse4 Comments

Day 661/33

Laura Gilkey on October 23, 2016October 23, 2016

We didn’t get to go home today. We were richly blessed right here instead. Benji’s absolute neutrophil count (ANC) dipped down to 140. His blast number went up a little,… Continue Reading Day 661/33

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, family, gratitude, immunotherapy, kindness, port, relapse3 Comments

Day 660/32

Laura Gilkey on October 22, 2016October 23, 2016

Today was a good day. I don’t have expectations, but I have hope, and that is a much different and more beautiful animal. Benji and I slept in, Saturday style.… Continue Reading Day 660/32

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood pressure, family, friends, platelets, relapse, siblings3 Comments

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