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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 689/61

Laura Gilkey on November 20, 2016

The sunrise was spectacular. Benji and I were awake, calmly lying in bed as our night nurse prepared to draw labs at 6am. I sleepily asked if she was going… Continue Reading Day 689/61

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, Neupogen, platelets, relapse, spleen, transfusion9 Comments

Day 688/60

Laura Gilkey on November 19, 2016

Benjamin didn’t sleep very well last night. His side was hurting intensely after yesterday’s platelet transfusion. I woke up before he did, when our day shift nurse came in to… Continue Reading Day 688/60

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, grandparents, platelets, relapse, siblings, spleen, transfusion7 Comments

Day 687/59

Laura Gilkey on November 18, 2016November 19, 2016

It was a very busy day up here on 7 South. I was pouring my first cup of coffee when the phone rang. It was the nurse navigator for the… Continue Reading Day 687/59

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, antibiotics, Blinatumomab, CAR-T, lymphocytes, platelets, relapse, transfusion, x-ray8 Comments

Day 686/58

Laura Gilkey on November 17, 2016

Benji slept for twelve hours last night. I could tell it would be a long rest when he fell asleep. He needed it. The round of chemotherapy Benji finished yesterday… Continue Reading Day 686/58

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, CMMRD, cyclophosphamide, etoposide, hemoglobin, Neupogen, platelets, relapse6 Comments

Day 685/57

Laura Gilkey on November 16, 2016November 16, 2016

The last day of Benjamin’s intermediate level chemotherapy has come and gone. Now, we wait. This morning’s lab report showed a continued trend in the right direction. Benji’s white blood… Continue Reading Day 685/57

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, cyclophosphamide, etoposide, platelets, relapse7 Comments

Day 684/56

Laura Gilkey on November 16, 2016

Benji slept through the night and didn’t need any more morphine or hot baths. I had a great feeling about today. I jumped up at shift change, excited to see… Continue Reading Day 684/56

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, CHOP, platelets, port, relapse, school7 Comments

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