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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 101

Laura Gilkey on April 12, 2015April 12, 2015

This picture doesn’t do it justice, but there was a tiny rainbow in the clouds over Lido Beach this afternoon as we picnicked there with our family. I was so… Continue Reading Day 101

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation, Erwinia, vincristine2 Comments

Day 100

Laura Gilkey on April 11, 2015

One hundred days of treatment. After one hundred days at Southside Elementary, the kindergarten and first grade teachers make a big to-do. The day is like a holiday, with class parties, crafts,… Continue Reading Day 100

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, siblings9 Comments

Day 99

Laura Gilkey on April 10, 2015April 10, 2015

The mood in my car was light and joyful as we headed over the Skyway this morning. Benjamin and I were both excited that his dressing would be removed and… Continue Reading Day 99

Categories: Uncategorized Tags: absolute neutrophil count, acute lymphoblastic leukemia, consolidation, Erwinia, interim maintenance, platelets8 Comments

Day 98

Laura Gilkey on April 9, 2015

We stayed in Sarasota today. I sent more photographs of Benji’s dressing to Tracey in the Infusion Center, and spoke to one of our favorite clinic nurses as well. They… Continue Reading Day 98

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood, Erwinia, homeschool, hospital homebound, pilates, platelets, school1 Comment

Day 97

Laura Gilkey on April 8, 2015April 9, 2015

I felt calmer, happier, and more positive this morning than I have in quite a while. Everything looked crisper and more clear. I made decisions easily. Patience came when I… Continue Reading Day 97

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation, delayed intensification, Erwinia, mini, platelets3 Comments

Day 96

Laura Gilkey on April 7, 2015April 8, 2015

I knew that gratitude would be the answer today before the sun rose. I did not have any idea how profoundly true this would be. Neither Michael nor I slept well… Continue Reading Day 96

Categories: Uncategorized Tags: acute lymphoblastic leukemia, community7 Comments

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