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Tag: total parenteral nutrition

Day 760/132

Laura Gilkey on January 30, 2017May 10, 2017

“Stand up straight and realize who you are, that you tower over your circumstances. You are a child of God. Stand up straight.” ~Maya Angelou These words saved me today.… Continue Reading Day 760/132

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, chemotherapy, clinical trial, fear, feeding tube, fever, hope, liver, lungs, pain, relapse, siblings, spleen, total parenteral nutrition90 Comments

Day 290

Laura Gilkey on October 18, 2015October 19, 2015

Benji has been “unhooked” for most of the day, free from connection to his IV pole. His supportive care medicines have all been switched to pills. When Isaac came by… Continue Reading Day 290

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood pressure, platelets, total parenteral nutrition4 Comments

Day 288

Laura Gilkey on October 16, 2015

Benji took several more steps in the right direction today. His spirits were down when he woke; his lips were hurting, but mostly I think he was processing the idea… Continue Reading Day 288

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, mucosal desquamation, mucositis, siblings, total parenteral nutrition4 Comments

Day 273

Laura Gilkey on October 2, 2015October 2, 2015

It was another rough night and another trying day. I am trying to be grateful for the steps Benji has made toward healing, and appreciate the slow wisdom with which… Continue Reading Day 273

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, fever, immunoglobulin, IVIG, marinol, total parenteral nutrition10 Comments

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