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Tag: siblings

Day 716/88

Laura Gilkey on December 17, 2016

I didn’t want to look at this morning’s numbers. I tried so hard last night to focus on Benji’s slow and steadily declining leukemia blasts, but this morning I was… Continue Reading Day 716/88

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, CAR-T, family, inotuzumab, platelets, relapse, siblings12 Comments

Day 703/75

Laura Gilkey on December 4, 2016December 5, 2016

“The waiting is the hardest part” is a phrase I’ve used in this space before, a phrase parents on the 7th floor utter frequently. It’s true, there is fear in… Continue Reading Day 703/75

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, blood transfusion, inotuzumab, platelets, relapse, siblings17 Comments

Day 702/74

Laura Gilkey on December 3, 2016December 4, 2016

Benjamin had another great day today. We deeply missed the other half of our foursome, but we enjoyed our hospital family, and soaked up a bit of Saturday sunshine in… Continue Reading Day 702/74

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, inotuzumab, platelets, relapse, siblings, transfusion8 Comments

Day 693/65

Laura Gilkey on November 24, 2016November 25, 2016

Today was a very good day. I admit the holiday-ness of it all threatened my emotional stability more than once. But Benji felt better today than he has in many… Continue Reading Day 693/65

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusions, family, gratitude, marriage, platelets, relapse, research, siblings5 Comments

Day 691/63

Laura Gilkey on November 22, 2016November 23, 2016

Benjamin’s fever rose and fell throughout the night, and into the day. At morning lab draw, our nurse took a blood culture. Nothing has come back positive for bacterial growth.… Continue Reading Day 691/63

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cyclophosphamide, etoposide, family, fever, platelets, relapse, siblings10 Comments

Day 688/60

Laura Gilkey on November 19, 2016

Benjamin didn’t sleep very well last night. His side was hurting intensely after yesterday’s platelet transfusion. I woke up before he did, when our day shift nurse came in to… Continue Reading Day 688/60

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, grandparents, platelets, relapse, siblings, spleen, transfusion7 Comments

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