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Tag: platelets

Day 715/87

Laura Gilkey on December 16, 2016December 17, 2016

It’s 3:45am. Benjamin just vomited every bit of last night’s nourishment from his body. He has abdominal pain he can’t describe. I don’t know anymore if it’s a result of… Continue Reading Day 715/87

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, blood transfusion, inotuzumab, nausea, platelets, relapse, sleep, ultrasound13 Comments

Day 714/86

Laura Gilkey on December 15, 2016

Benjamin’s fever took a while to come down last night. He was burning up. When it finally came down we were able to catch a few hours of sleep. His… Continue Reading Day 714/86

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, bone marrow aspirate, fever, inotuzumab, marinol, nausea, platelets, relapse, transfusion12 Comments

Day 713/85

Laura Gilkey on December 14, 2016December 15, 2016

Benjamin has received his second dose of Inotuzumab, and everything went smoothly. The morning report revealed more of the same: a slow and steady decline of leukemia cells. Benji’s total… Continue Reading Day 713/85

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fever, inotuzumab, platelets, relapse8 Comments

Day 712/84

Laura Gilkey on December 14, 2016December 14, 2016

Benji woke up before the sun in horrible pain. I wondered what was happening; he felt so much better yesterday! He begged for a bath, but declined pain medicine. The… Continue Reading Day 712/84

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, kytril, marriage, nausea, platelets, relapse, spleen11 Comments

Day 711/83

Laura Gilkey on December 12, 2016December 13, 2016

Hope is such a strange and morphing creature. This morning, the fog was so thick outside our window that it masked the world below. Nothing else was visible. With the… Continue Reading Day 711/83

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, CAR-T, inotuzumab, nurses, platelets, port, spleen10 Comments

Day 709/81

Laura Gilkey on December 10, 2016December 11, 2016

Benji needed more morphine and heat packs throughout the night to stay comfortable, but these tools worked, and he slept well. He woke up in pain and wanted a hot… Continue Reading Day 709/81

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, morphine, nausea, platelets, relapse, spleen15 Comments

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