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Tag: inotuzumab

Day 726/98

Laura Gilkey on December 27, 2016

We are in the waiting space.  We have been here five times before. I wish I weren’t used to this but I am, and the blessing therein is perspective. The… Continue Reading Day 726/98

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow aspirate, inotuzumab, nausea, relapse14 Comments

Day 725/97

Laura Gilkey on December 26, 2016December 27, 2016

We’re settled back in here on 7 South. I was up early, packing bags and enjoying the quiet morning light through the windows of our beautiful house. When Benji woke… Continue Reading Day 725/97

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow aspirate, inotuzumab, nausea, relapse, siblings15 Comments

Day 720/92

Laura Gilkey on December 21, 2016December 21, 2016

Benji has received his last dose of Inotuzumab, at least for this cycle. The next step is a huge step, and I’m trying to stay present as it approaches. For… Continue Reading Day 720/92

Categories: Uncategorized Tags: acute lymphoblastic leukemia, birthday, c. diff, food, inotuzumab, nausea, relapse9 Comments

Day 719/91

Laura Gilkey on December 20, 2016December 21, 2016

Benji and I were up before shift change again. He was in great discomfort. He begged our night nurse not to draw morning labs–a daily procedure that has never bothered… Continue Reading Day 719/91

Categories: Uncategorized Tags: acute lymphoblastic leukemia, ativan, c. diff, inotuzumab, marinol, nausea, platelets, relapse, transfusion15 Comments

Day 718/90

Laura Gilkey on December 19, 2016December 22, 2016

Benjamin and I slept well last night and were both awake at shift change. His numbers are holding steady. Saturday’s increase may have been sample bias, I don’t know; but… Continue Reading Day 718/90

Categories: Uncategorized Tags: acute lymphoblastic leukemia, c. diff, diarrhea, inotuzumab, marinol, nausea, relapse11 Comments

Day 717/89

Laura Gilkey on December 18, 2016December 19, 2016

Today was a very good day. It didn’t start that way. We were up before 5am with Benjamin in great abdominal pain. He asked for heat packs and cold packs… Continue Reading Day 717/89

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, home, inotuzumab, marinol, nausea, relapse11 Comments

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