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Tag: etoposide

Day 748/120

Laura Gilkey on January 18, 2017May 11, 2017

Benjamin and I woke up during the morning blood draw. It was still dark. Our nurse had to do a cap change on Benjamin’s IV line because he got transfusions… Continue Reading Day 748/120

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cyclophosphamide, etoposide, intrathecal methotrexate, lumbar puncture, nausea, pain, spleen14 Comments

Day 747/119

Laura Gilkey on January 17, 2017January 18, 2017

We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting,… Continue Reading Day 747/119

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, kytril, lumbar puncture, marriage, platelets, relapse, siblings, spleen17 Comments

Day 691/63

Laura Gilkey on November 22, 2016November 23, 2016

Benjamin’s fever rose and fell throughout the night, and into the day. At morning lab draw, our nurse took a blood culture. Nothing has come back positive for bacterial growth.… Continue Reading Day 691/63

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cyclophosphamide, etoposide, family, fever, platelets, relapse, siblings10 Comments

Day 688/60

Laura Gilkey on November 19, 2016

Benjamin didn’t sleep very well last night. His side was hurting intensely after yesterday’s platelet transfusion. I woke up before he did, when our day shift nurse came in to… Continue Reading Day 688/60

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, grandparents, platelets, relapse, siblings, spleen, transfusion7 Comments

Day 686/58

Laura Gilkey on November 17, 2016

Benji slept for twelve hours last night. I could tell it would be a long rest when he fell asleep. He needed it. The round of chemotherapy Benji finished yesterday… Continue Reading Day 686/58

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, CMMRD, cyclophosphamide, etoposide, hemoglobin, Neupogen, platelets, relapse6 Comments

Day 685/57

Laura Gilkey on November 16, 2016November 16, 2016

The last day of Benjamin’s intermediate level chemotherapy has come and gone. Now, we wait. This morning’s lab report showed a continued trend in the right direction. Benji’s white blood… Continue Reading Day 685/57

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, cyclophosphamide, etoposide, platelets, relapse7 Comments

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