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Tag: cytarabine

Day 759/131

Laura Gilkey on January 29, 2017May 10, 2017

Rhythm. A word and an idea I’ve always loved. Tonight, our rhythms feel very off. I’m listening to Benjamin breathe through an oxygen mask while he sleeps. His breaths are… Continue Reading Day 759/131

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, cytarabine, family, heart, oxygen, platelets, pulse, relapse, siblings, transfusion16 Comments

Day 758/130

Laura Gilkey on January 28, 2017May 10, 2017

Everything seemed to takeĀ forever today. I don’t know how much of this is based in reality and how much stems from my own anxiety. Benjamin has received his three doses… Continue Reading Day 758/130

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cyclophosphamide, cytarabine, pain, PCA, relapse, vincristine11 Comments

Day 757/129

Laura Gilkey on January 27, 2017May 10, 2017

Benjamin was sitting on the toilet at 3am. He had just vomited and the basin was still full at my feet. His head rested on my belly while I held… Continue Reading Day 757/129

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cyclophosphamide, cytarabine, feeding tube, formula, relapse, vincristine16 Comments

Day 232

Laura Gilkey on August 21, 2015August 21, 2015

Banyan downloaded a new audiobook–Tales of a Fourth Grade Nothing–to keep Benji entertained on the drive over the Skyway this morning. It is read by Judy Blume herself, so it’s… Continue Reading Day 232

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, cytarabine, Erwinia, siblingsLeave a comment

Day 224

Laura Gilkey on August 13, 2015August 13, 2015

It seemed like there was a sort of dissonance in the air right from the starting gate today. There was tension between Benji and me, between Banyan and Michael; evenĀ the… Continue Reading Day 224

Categories: Uncategorized Tags: acute lymhoblastic leukemia, cytarabine, discipline, Erwinia, vincristineLeave a comment

Day 223

Laura Gilkey on August 12, 2015August 12, 2015

Banyan went to another friend’s house bright and early this morning, and Benji and I headed north. There were light sun showers all along our way. As a result, we… Continue Reading Day 223

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cytarabine, essential oils, hair lossLeave a comment

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