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Tag: antibiotics

Day 739/111

Laura Gilkey on January 9, 2017May 13, 2017

Benji is sleeping next to me. He is pleasantly exhausted from a long, busy day that went very well. Benji was a little nervous this morning and his tummy hurt.… Continue Reading Day 739/111

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, clinic, clinical trial, home, inotuzumab, nutrition, relapse, stomach pain11 Comments

Day 716/88

Laura Gilkey on December 17, 2016

I didn’t want to look at this morning’s numbers. I tried so hard last night to focus on Benji’s slow and steadily declining leukemia blasts, but this morning I was… Continue Reading Day 716/88

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, CAR-T, family, inotuzumab, platelets, relapse, siblings12 Comments

Day 714/86

Laura Gilkey on December 15, 2016

Benjamin’s fever took a while to come down last night. He was burning up. When it finally came down we were able to catch a few hours of sleep. His… Continue Reading Day 714/86

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, bone marrow aspirate, fever, inotuzumab, marinol, nausea, platelets, relapse, transfusion12 Comments

Day 687/59

Laura Gilkey on November 18, 2016November 19, 2016

It was a very busy day up here on 7 South. I was pouring my first cup of coffee when the phone rang. It was the nurse navigator for the… Continue Reading Day 687/59

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, antibiotics, Blinatumomab, CAR-T, lymphocytes, platelets, relapse, transfusion, x-ray8 Comments

Day 503

Laura Gilkey on May 18, 2016

Today felt a lot more manageable than yesterday did. I spoke with the clinic nurse this morning about Benjamin’s toe, and she asked a lot of thoughtful questions. She feels we… Continue Reading Day 503

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, MRD, siblings, steroids5 Comments

Day 345

Laura Gilkey on December 12, 2015

Today was a busy holiday Saturday. Benji took his weekend antibiotics this morning, then helped Michael clean the backyard in preparation for next weekend’s celebration of Benjamin’s 8th birthday. I… Continue Reading Day 345

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics1 Comment

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