Benji has been “unhooked” for most of the day, free from connection to his IV pole. His supportive care medicines have all been switched to pills. When Isaac came by… Continue Reading Day 290
Day 290
on Category: Uncategorized
on Day 289
on We’ve spent three full weeks in this little room. The lessons have been vast and varied, and they continue to come. Today I had to dismiss some very destructive thinking.… Continue Reading Day 289
Day 288
on Benji took several more steps in the right direction today. His spirits were down when he woke; his lips were hurting, but mostly I think he was processing the idea… Continue Reading Day 288
Day 287
on According to our night nurse, Benji “slept through the night.” That’s not quite accurate, but we definitely got more sleep than we have in many days. It was like a… Continue Reading Day 287
Day 286
on Benji’s lips hurt again last night, and he just couldn’t leave them alone. We didn’t get much sleep up here on the seventh floor. Sarah spent the night with us… Continue Reading Day 286
Day 285
on Benjamin is no longer in isolation. He has been fever free for well over 24 hours, and his latest swab came back negative for rhinovirus–he doesn’t even have a common… Continue Reading Day 285