Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Category: Uncategorized

Day 302

Laura Gilkey on October 30, 2015October 30, 2015

The boys had no school today. I was hoping that would mean sleeping in a little, but it was not to be. Because Benji’s body endured the Methotrexate toxicity, every lumbar… Continue Reading Day 302

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, leucovorin, methotrexate toxicity, sleep, steroids, stress3 Comments

Day 301

Laura Gilkey on October 29, 2015

This gorgeous day was the first one that felt “normal” in quite a while. I began the day up on the Ringling Bridge with my sweet walking friend well before sunrise.… Continue Reading Day 301

Categories: Uncategorized Tags: acute lymphoblastic leukemia, school, siblings2 Comments

Day 300

Laura Gilkey on October 28, 2015

Benjamin wasn’t quite ready to return to school again this morning. Today, I think it was as much a case of nervousness as it was physical discomfort, though the amount of treatment he… Continue Reading Day 300

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, hunger, prednisone, school, steroids5 Comments

Day 299

Laura Gilkey on October 28, 2015October 28, 2015

Benjamin began long term maintenance today. (I notice I have a tendency to isolate this fact, like it needs verification. It is still sinking in.) It was a super early… Continue Reading Day 299

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, intrathecal chemotherapy, intrathecal methotrexate, leucovorin, long term maintenance, lumbar puncture, methotrexate toxicity, prednisone, vincristine1 Comment

Day 298

Laura Gilkey on October 26, 2015

I am being granted the opportunity to learn the same lessons over and over and over again. Like, two seemingly contradictory emotions (i.e. anger and gratitude) can and should be able to… Continue Reading Day 298

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, chemotherapy, intrathecal methotrexate, leucovorin, long term maintenance, lumbar puncture, methotrexate, prednisone, school, vincristine3 Comments

Day 297

Laura Gilkey on October 25, 2015

It was a month ago today that we went to the Emergency Room and Benji was later admitted to the hospital. It was a month ago that the endless rounds of testing… Continue Reading Day 297

Categories: Uncategorized Tags: acute lymphoblastic leukemia, anger, school3 Comments

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content