I was up super late last night. I had to administer Leucovorin to Benji at 1:20am, 60 hours after his lumbar puncture. Once the hour passed midnight, I made the decision to… Continue Reading Day 470
Day 470
on Category: Uncategorized
on Day 469
on The newly increased dosage of steroids are in FULL effect, and Benji’s only taken five doses. I walked into the boys’ room this morning to wake them up after a… Continue Reading Day 469
Day 468
on For the first time since long term maintenance began, Benjamin went to school on the day following a lumbar puncture. I had a feeling he would. He woke up easily and calmly… Continue Reading Day 468
Day 467
on Benjamin began his third cycle of long term maintenance today. He woke up calmly and contently. He did not complain when he couldn’t eat breakfast. He did not complain when I placed… Continue Reading Day 467
Day 466
on I couldn’t sleep last night. I don’t know if it was tomorrow’s hospital trip on the brain, or the afternoon Chai I should have skipped, but my mind was racing.… Continue Reading Day 466
Day 465
on We are home, sun-soaked and tired. We made the most of our final staycation day with the boys. Banyan and Benji shared our backyard hammock this morning and enjoyed the view… Continue Reading Day 465